They threatened to call police to eject me from hospital!

Kimberly Charles

Since 2014, when she became of age and transitioned to adult SCD treatment, Kimberly Charles has been finding it very rough indeed. The days of loving, smiling, playful empathetic paediatric nurse specialists and haematologists were replaced by the stark realities of adult medical indifference.

‘My most memorable sickle cell crisis and hospital admission was in 2014 and every admission thereafter,’ Kimberly says. ‘I had been admitted for pain and this was going to be my first time being treated as an adult sickle cell patient. This moment would serve as an eye-opening experience for me because it would introduce me to the dark side of the medical industry.

‘Being admitted to the hospital as an adult sickle cell patient would mean I could no longer have the luxury of caring and attentive nurses, immediate and accurate medical treatment, nor access to a competent medical professional.’

As an adult, Kim quickly found that being admitted to a hospital would come in the form of begging, pleading, and crying out in agony, only to be ignored.

On one occasion, unbelievably, the director of the hospital threatened to call the police if the young adolescent in acute sickle cell pain crises did not ‘behave’! (By behave the director meant keeping quiet).

Statements

Kimberly clearly remembers being told – ‘Sickle cell pain only last three days…’ and someone commenting, – ‘She’s faking her pain’!

Kim clearly remembers being told –

‘Sickle cell pain only last three days…’ and someone commenting, – ‘She’s faking her pain’!

At the adult clinic, medical personnel who treated Kim would seem to have no clue as to how to correctly follow years of documented medical protocol. She was subjected to doctors’ personal selection of medications they believe all sickle cell patients wanted.

Frustration

At a point, thoroughly frustrated and fed up of the prejudice and stigma she received, Kim became fearful of checking in at any hospital for treatment.

‘Oftentimes, I fought with myself and thought ‘I would much rather pass away from the suffering in the comfort of my home, than to pass away due to medical negligence.’

The innocence of childhood and the confidence built up in those years towards the healthcare industry were eroded by a few short years of upgrading to adult treatment.

‘I have lost all hope and faith in the medical industry and in the people who corrupted it’.

SICKLE CELL

Poem By K.C. aka Kimbo Sqeez

If I told you how I feel

You wouldn’t understand

You’d simply nod your head and say

“Yeah I understand”

But you don’t know the type of pain

That runs inside of me

It’s that sickle cell crisis

Check your anatomy

We start out fine the first minute

But crippled in the next

Rushing to the hospital

To see what meds to get inject

Needle after needle

But they can’t find a vein

So they keep digging in

Just worsening the pain

Nurse after nurse

I feel like a test dummy

Cause after they try and fail

There’s nothing left of me

Now I’m on the IV

All this medication

Knocking me out

Causing hallucinations

From the Morphine

The Benadryl

And Demerol

The Toradol,

The Pepcid

Yeah I know it all

Might happen once a year

Maybe 5 or 6

But that’s a healthy SC kid

Imagine one that’s sick

We fear blood tests

So we punch and kick

Doctors don’t understand

They say “We can’t control that kid”!

But why’d you have to do it

So early in the morning

Cause I know when you came in

You could’ve heard me snoring

I stare at this pump

Which I see everyday

Shooting liquids into me to fade the pain away

Thought I was supposed to feel better

That’s not the case

The results are in

My hemoglobin’s out of place

Now its transfusion time

The doctor’s in a hurry

He’s a hero if this goes well

So like rats they scurry Gathering up stuff

But they don’t know the half

It’s what a parent fears

But they’re just doing their task

Phone calls are made

To other doctors

Friends of the family

Anything to stop the

Thought of your child

Receiving blood

Cause now you’re paranoid

Did they clean it good?

Hours pass

The doctor changed his mind

“We’ll wait another day” he says

Then goes on with his life

Blessings drop from the sky

Now I feel better

Everything looks good

Including the weather

Held back another day

Just to make sure I’m Ok

But once I’m discharged

It’s like “hip hip hooray!”

Then I think to myself

This journey isn’t over

I’ll be perfectly fine

And just like that it starts over…

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