Bill Gates Foundation Donates $1.5m For SCD Cure
Bill & Melinda Gates Foundation The Bill & Melinda Gates Foundation has donated $1.5 million to Boston Children’s Hospital to develop a gene therapy for sickle cell disease, with the...
Tragedy Of A Poorly-Managed Healthcare System: SCD Patient Detained In Hospital For Inability To Pay Dies
The late Miss Ezemaduka (left) receiving a gift from Mrs. Maureen Aisha Edwards, National Coordinator, APLSCD A Sickle Cell Patient, Miss Onyinye Ezemaduka, has died while being detained at a...
President Trump Signs SCD Treatment Act into Law
more funds to flow into research for improved quality of life, cure .... On December 11, 2018, the US Congress passed the bi-partisan Sickle Cell Disease and Other Heritable Blood...
Of Triumph – crises and courage monologues
And I looked at the bottle of 75 hydrocodone pills and wished I could just take them all
and not have to live like this.
He Would Probably Be 72 Years Old Before He Has Another Sickle Cell Crises!
A day in the life of a laboratory scientist Without an effective laboratory to compliment services, a medical doctor works as if blindfolded. Cognizant of this, the management of Ayokemi...
SICKLE CELL DISEASE and my Life Struggles, Book By Carolyn Johnson
An interesting memoir about the struggles of Carolyn Johnson. This book is obtainable at https://www.amazon.com/Disease-Struggles-Carolyn-Johnson-2015-01-20/dp/B01FKRLBNC/ref=sr_1_2?ie=UTF8&qid=1544209077&sr=8-2&keywords=sickle+cell+and+my+life+struggles
Greg EMUZE: my life with sickle cell anaemia
The doctor has never heard of sickle cell anaemia …how did Greg survive this episode of sickle cell crises in a foreign land? Why his father once told him, ‘marry...
My Mandate Is To Shed Light On SCD – Beverley Francis-Gibson, President/CEO, SCDAA Inc
I’ve launched a ‘stigma free’ campaign so that those who have been or feel ostracized by society because of their illness know that there is hope and that there are advocates dedicated to fighting for them locally, nationally and internationally.
Living with an invisible illness: You look very OK to an observer but feel awful inside
Living with an invisible illness You look very OK to an observer but feel awful inside By Lady Anne Welsh, UK [caption id="attachment_623" align="alignright" width="300"] Anne Welsh Source: anne welsh.com[/caption]...
NIH hastens move to cure sickle cell
[caption id="attachment_983" align="alignright" width="523"] NIH moves towards SCD cure[/caption] The National Institutes of Health recently announced the launch of a new initiative to help speed the development of cures for...